October is spina bifida awareness month http://spinabifidaassociation.org/event/spina-bifida-awareness-month/.
Nova Cells Institute has been treating spina bifida in infants and children for over five years now using a combination of laboratory primed umbilical cord stem cells and its proprietary “Beacon Factor“. The results it has documented and reported attests to the power of its treatment approach.
Check this out for yourself by clicking this link and then perusing the many case histories: https://ncimx.wordpress.com/category/spina-bifida/
What follows below are 2 emails* sent to Nova Cell Institute’s Grace Odgers, Ph.D. cand., by the mother of Danielle “Dani” Smith, a little girl with spina bifida who has been the subject of 2 prior blog entries on this website:
October is #spinabifidaawareness” (Spina Bifida Awareness) month. If you or someone you love is affected by spina bifida, please read this concerning Nova Cell Institute’s highly successful treatment program for this condition: http://www.novacellsinstitute.com/spina-bifida-stem-cells.html
Danielle “Dani” Smith was born in September 2006 with spina bifida in which her spinal cord did not completely form and resulted in partial paralysis from the waist down (Myelomeningocele). Since then this brave little girl has had five major operations including one to place her spinal cord back in her body, three brain surgeries, and double eye surgery. She then did two stem cell treatments and has undergone lots of physical therapy. And, during June 2013 she was treated in Mexico by Nova Cells using primed stem cells and its Beacon Factor. This treatment and Dani’s responses are reflected in this news release from October 2013: http://www.24-7pressrelease.com/pdf/2013/10/05/press_release_364003.pdf
Dani has made many gains during the year since that news release was published including, most recently, something captured by her mother in a short video. This clip was inserted in an animated video which can be accessed by going to https://www.youtube.com/watch?v=RUBvyFt0Vm4#t=109 or click the screen image below,
Walking on the treadmill for the first time in his life! He’s in a harnessing system and only has braces from the knees down! We were told he would NEVER in his lifetime do this! All I have to say to every doctor that said NO and he CAN’T and he NEVER WILL is this…….we serve an awesome mighty God who says my son WILL WALK! He promises healing to all who ask for it as we receive it for our son in the name of Jesus!
My son Roman was born with Spina Bifida in 2010. He is a L4-L5 level which means he cannot void on his own and does not have bowel control. His legs were very weak and he could not walk independently until he was 2.5 years old. He was able to hold on to a walker and push it slowly but the big change came after stem cells. He received his first stem cell treatment in China, and in Mexico twice since then. The latest change was from Mexico.
We arrived to San Diego a few days before treatment and checked into our hotel downtown. The next few days we spent exploring the city and taking a trip to the San Diego SeaWorld courtesy of Warrior Families Beating Spina Bifida Foundation. Roman really enjoyed that trip because he got to see the sea lions and pet the little sharks. He was not as excited about Shamu as I was.
The next day we were escorted to Mexico across the border with Grace and Abel Pena. They were really great and picked us up in their car and drove us to the hospital. The staff greeted us as we registered in as patients, signed some papers and answered questions about his blood type etc. I can understand how some people may be cautious signing things and giving consent to doctors in a different country but since I knew Grace and Abel from our previous trip to Mexico, I was at ease.
The doctors and nurses were very accommodating and made sure we were comfortable with our room and the procedure. It was much faster than I remember it the first time. The anesthesiologist and doctors talked about how they would only put him to sleep for a very short time and not keep him under sedation when not necessary. They had performed the spinal taps many times and knew their jobs very well. I felt confident in their care and did not have second thoughts about the procedure. I only wish that Roman cooperated as well as I thought he would. He did not like the taste of versed (the relaxing serum before procedures) so we opted to take him without it to the procedure room. The hospital has the coolest stair case that has a slide like side so they can transport people in a wheelchair up and down the twisty ramps.
During the procedure, Grace and I went to eat at a local place so that I would not be nervous and we hurried back because Roman was not going to be in the procedure very long. After we came back, Roman was not awake yet but was brought in soon after. He did great; there was no pain in his back or the IV. He was a bit freaked out thinking that the procedure was just beginning after looking at his IV. It took a while to convince him that we are all done.
After about half an hour, he began eating everything, and I mean everything he could get his hands on. The Jell-O, the rice, the juice, the fruit cup. We had asked for refills. He was feeling really great; He said “Is this Mexico? I like Mexico”…while he’s eating and watching Netflix on our laptop. (by the way, wifi works there and I would take a laptop with Netflix if you have it.)
We had a great experience and soon after we left back across the border to our hotel room. We stopped on the way while Grace and Able treated us to some local cuisine of ice cream, then sandwiches while walking around the outside mall.
Since the trip we have noticed Roman waking up in the middle of the night saying he feels his butt more and that he has to go pee. One day after about 1.5 months he had a wet diaper. He has never had a wet diaper in 6 years! Since then his recurrent infections suddenly stopped and he has been having more strength in his legs to run and walk without his AFO shoes. I am excited seeing these results they are truly worth it! The peeing is becoming more consistent and we are seeing good results in his muscle strength as well.
I encourage anyone that wants to give their kiddo a chance to improve their life to take a chance and make this trip happen.
Kara Underwood posted this video of her son, Bryson, walking without braces to You Tube on Thursday, 7-24-2014: https://www.youtube.com/watch?v=yIr5DJygq6k&feature=youtu.be
Bryson Chailer has some a long way thanks to faith, therapy and, yes, stem cell medicine!
If you are not acquainted with Bryson’s story here is a link to an earlier Nova Cells Institute blog entry that contains information, links, photos and more: http://ncimx.wordpress.com/2012/05/06/bryson-chailer-rapid-impressive-improvements-in-child-with-spina-bifida/
Photo of Bryson with his Mum, Kara Underwood, taken during December 2013
STEM CELL INFORMATION!!!
I have received SO MANY emails requesting information on the stem cells. I would LOVE to talk to each and every one of you personally (and don’t mind doing so) but I do get extremely busy and that often leaves me …very forgetful!
I am posting this and pinning it to the top of the page so it is easily accessible.
NOVA Stem Cells Institute (website below):
Yes, it is in Mexico. NO, it is not scary!! The stem cell treatment was done at the women and children’s hospital in Tijuana. The doctors and nurses were very nice and accommodating. It was pretty much like any other hospital. Private room, TV, etc. I will say, the doctors and staff from NOVA speak English… the nurses at the hospital don’t. Just to give a heads up.
The website for NOVA has tons of information, photos, videos, testimonials, etc. You will be dealing with Grace Odgers for information and such at NOVA. Her email is email@example.com and she will GLADLY answer any questions that you may have. If she can’t she will get it.
Our experience was absolutely wonderful. As concerned parents, we left our hotel in San Diego and agreed that if anything felt off, or if we were uncomfortable, we were leaving. No questions asked. But we never had that moment. The procedure is quick, and we were only in Mexico for 3-4 hours at most.
If you have any other questions, please feel free to contact me. As far as progress, browse through Dryden’s page – everything is updated almost daily.
If you do talk to Grace, be sure to tell them that DRYDEN sent you!
Lots of love and GOOD LUCK!!!!!
May 2014 -new Alejandra video: https://www.facebook.com/photo.php?v=613377255426056
Alejandra’s Mum reports: It has been 8mos since Alejandra’s first stem cell treatment and look how she is crawling today Exciting, can’t wait to see what the next one will do! I must give some credit to The March of Dimes, Conductive Education too…for isolating each leg movement independently from the other.
October 12, 2013 blog entry on Alejandra: http://ncimx.wordpress.com/2013/10/12/2-new-videos-of-little-alejandra-spina-bifida-reveal-impressive-progress/
Dani Smith walks – 4-7-2014 You Tube video: https://www.youtube.com/watch?v=YnOGxz2CCMY&feature=youtu.be
Read about Dani in this NCIM blog entry: http://ncimx.wordpress.com/2013/10/05/ncim-pioneering-science-old-fashioned-caring/
April 5, 2014
It’s been one year since we started this page and started fundraising for Dryden’s trip to NOVA Cells. One of the best decisions we have ever made. Dryden’s new favorite activity is trying to climb. He was climbing up Sissy’s step stool, climbing up the side of the recliner, just wanting to be higher. We are so thankful to everyone who helped make this happen. And so appreciative to NOVA cells for this opportunity. I hope in time this will become a more available treatment. We are certainly going to try again!
April 6 2014
He’s a climbing machine!!
April 6, 2014
Crawl baby, crawl!!!!! Dryden is now saying (vocally) puppy, baby, mommy, daddy, cookie, cracker, nanny, pawpaw, papa, sissy… I may be forgetting something here but… He’s all of a sudden bursting with vocabulary.
Dryden is a cute, charming little boy with spina bifida who received primed stem cells & NCIM’s proprietary Beacon Factor on 3-28-14. The entries below are from Dryden’s Facebook page.
Whew! Long day. We are back at the hotel!!!
Everything went smoothly and we are already seeing some positive results! His feet definitely have better circulation – they are all punk and warm instead of splotchy and cold!
He has been twitching a LOT in his lower legs/feet. This means the nerves are starting to make some sort of connection to his brain. He even moved his left foot and toes when we asked him to (I’ll get video to you in a bit!)
Also – a funny tidbit – he was sitting in my lap and apparently had gas. Those of you who know Dryden know that’s pretty common. What was funny was that every time he would fart, he would look down, look at me and point to his belly. Ha ha! He’s gaining some sensation somewhere new with that too, I suppose!
We got back in tonight and stopped in at Dryden’s great grandparents to say hello. Dryden was on the floor and we were all talking. We looked down and he was on his hands and knees CRAWLING!!!! He only went a little ways, but he was very much so 4 point crawling!!! Then as we were sitting there talking about him, he pulled up onto his knees all by himself on the coffee table! Little dude is getting some strength or making some connections – either way – I’m so happy!!!!
Dryden is just continuing to amaze me.
I forgot to mention the other day when we were at his great grandmas that he tried climbing the stairs! Never even noticed them and he was going up!
This morning in therapy he tried crawling a little bit too – but did something even more amazing. He got to his big cube toy and tried pulling up. Not just to his knee either!! She asked him if he wanted to stand up and he said YES!!!! We helped him get his feet secured and he stood the…re for a short little time playing! Baby steps!!
First time he has ever WANTED to stand!
Dryden wasn’t quite as excited to stand this afternoon, but we made him anyways!
This is him standing up with NO BRACES on!!!
His PT even said she could feel his muscles in his FEET working when he would stand! His ankles didn’t roll or fall out from under him either!
I can only hope that with therapy he will have increased progress!!
Definitely going to be saving for another stem cell treatment in the future!
Little Rikky could not feel anything below his knees but started doing so in the first few hours following his Nova Cells treatment!
POSTED BY RIKKY’S FOLKS ON THEIR LITTLE BOY’S FACEBOOK PAGE ON 1-8-2014 (Link further down below)
Check it out! Rikky had no feeling below his knees prior to the treatment! This is 30 minutes after he came out of the O.R. and we will see results for 6-8 MONTHS!
If you didn’t believe it before when we said it was going work then watch this!!!
CLICK PHOTO TO WATCH THE VIDEO (RIKKY’S FACEBOOK PAGE)
I just want to scream from the freaking rooftops, I am so full of joy and thankfulness! It exceded whatever I imagined to happen, just seeing hime moving his left leg is giving me chills over and over and over and over again! AND HIS LEGS ARE LOOSEY GOOSEY!EVEN MORE THAN AFTER THERAPY!!!!!!!!!!!!!!!!!!!!!!!
And posted tonight (1-8-2014) from SEAWORLD in San Diego at around 7 pm Pacific Time:
“FEEL MY LEGS, DAD”. So we are sitting watching the dolphin show and Rikky says this because he has shorts on and it’s a little chilly (we all have shorts on btw). He NEVER felt his lower legs before!
And posted to Rikky’s Facebook page on 1-14-2014:
Went to Rikky’s PT she is amazed at Rikky’s progress from the stem cells! She says it is unbelievable and she is going to write a letter that says how the stem cells worked so well on Rikky. She has been his PT since he was 2 months old, and she has been a PT for over 30 years. She is quite amazed! This makes me quite joyous because she validates what I have been seeing and I know now that I am not imagining things! This is only ONE WEEK after treatment, we will still have progress for 6 MONTHS!! This is so wonderful! Grace and Abel are angels!!! I am so glad we decided to do this! I hope more people will see this progress with Rikky and get this for their kids too! I highly recommend NOVA CELLS INSTITUTE!!! THEY HAVE CHANGED OUR LIVES!!!!!!
POSTED ON 1-24-2014 ON RIKKY’S FACEBOOK PAGE:
OK, we seriously just went to ER because I haven’t been able to get a catheter in. The ER dr says he is voiding on his own and does not need to be cathed so call his uro Dr and get the tests done to be sure, but he is completely voiding ON HIS OWN!!!!!!
Check out Rikky’s FACEBOOK page at https://www.facebook.com/BlazinforRikky (Videos, posts, comments & more)
New video of Ryan standing ALMOST all on her own:
We are starting fundraising again this weekend. and our goal is to be back (to Nova Cells) by this summer/fall
Ryan’s core strength is MIND BLOWING. She’s breathing so much better and eating all sorts of different foods. She is also writing her name and is able to stabilize her trunk and balance when in a crawling position and when standing. Her legs aren’t doing as much as we hoped, BUT she has gained so much strength in her core and in other places I never even thought of it helping her legs. I know for a fact we wouldn’t be where we are today without your help and the stem cells. Hopefully a 2nd round will do much more.
We love you guys and can’t wait to see you again.
GOD IS GOOD. Love you guys MUCHO!!!!
AND IN A FEBRURY 10, 2014 EMAIL SHELLY HAD THIS TO SHARE WITH NCIM’S GRACE:
I have so much to tell you and show you!
Ryan is moving her legs on her own CONTROLLED!! We’re not walking – but this is a step in the right direction.
Not only that – but she recently had a sleep study to check on her central sleep apnea. Before stem cells, she was having 66 episodes per night. After we Only had 7! They are thinking about taking her off her oxygen!
We hope to see you all again before this fall. I have videos to send but I’m at the gym. I send them when I get home. We love you and hope all is well.
Honor has gained feeling in her right leg in the thigh and hip area its coming and going but she has felt it multiple times when we are tickling her. She has also felt us tickling her toes off and on we are back home now and just thrilled about all the changes she is experiencing. She also is feeling so good and she’s so much stronger it seems her energy level has skyrocketed and you can just tell she isn’t feeling as much pain. It has been so amazing to be able to touch her places she previously didn’t even know existed on her body and watch her look around and cry trying to figure out where it’s coming from. She feels it! It’s a whole new world for her now. It’s scary for me at the same time, I know she has been living with a broken femur and has escaped the reality of that pain now she must continue to live with it yet may feel some of that pain. Its been amazing to see her be so happy and full of energy. I’ve said it before and I’ll keep saying it…. God is soooo good. Thank you all for your support and kind words we are blessed to have such an amazing support system.
Nova’s Cells Institute (NCIM) doctors, scientists and other participants in its ever-evolving stem cell medicine program celebrate each and every improvement that surfaces in the people it treats. What follows below are links to 2 videos of little Alejandra which showcase the truly impressive post-treatment progress she has made. These videos were posted to Alejandra’s Facebook page by her Mum whose comments follow the link to each video.
Join NCIM as it celebrates little Alejandra’s ongoing journey to betterment and her recent improvements!
https://www.facebook.com/photo.php?v=508529795910803 (2 minutes, 38 seconds)
Antonella’s comment about this video of her daughter, Alejandra: 1 month post stem cells…I so wish I had a video of what she was doing before stem cells because you would not believe this progress…THANK YOU NOVA CELLS, MEXICO!
https://www.facebook.com/photo.php?v=508520542578395 (1 minute, 7 seconds)
Antonella’s comment about this video of her daughter, Alejandra This is how she is moving now…only 1 week after stem cells…THANK YOU NOVA CELLS, MEXICO! — at March of Dimes Canada.
Do you wonder what sets NCIM apart from other stem cell medicine operations? We have summarized the major differences in a simple chart which you can access by clicking the image below or by clicking or keying in http://bit.ly/18Sf87t
On Sunday an NCIM press release on little Ryan Neighbors appeared on 3 PR services (24-7 Press Releases, Fire PR in the UK, and Free Press Release) and in the handful of hours since has created a bit of a positive stir. For one thing, Europe’s largest spina bifida charity picked up on tweets of the press releases and ran them on their main website at http://paper.li/SHINEUKCharity/1319719408. Many parents of children with spina bifida also picked up on the news release as well and one, Kara Underwood, whose son Bryson benefitted from treatment by NCIM, had this to say about Nova Cells on Facebook (Sunday 9-29-2013):
Best place on the planet for all your stem cell needs! They have the most caring team of patient coordinators and doctors around! Love them all to pieces! They are helping so many have a better quality of life! I praise God for Nova Cells Institute!
Email Kara at firstname.lastname@example.org
Want to know more about NCIM and its stem cell treatment program for spina bifida and other neurological issues? Call NCIM’s US information line at 1-562-916-3410 (10 am to 7 pm Pacific Time, Monday through Friday) or email NCIM patient care facilitator/educator Grace by e-mail at email@example.com.
Click this link to access the NOVA CELLS HEALING TOUCH newsletter, Spina Bifida Edition: http://ncimx.files.wordpress.com/2013/10/nova-cells-healing-touch.pdf
On November 13, 2012, we had the privilege of heading back down to Nova Cells Institute in Mexico for another stem cell treatment for our son Spencer. He has been doing great since the last treatment and we wanted to keep up his progress and see more improvements. We were excited because this treatment would be new for Spencer in the sense he would be getting stem cell “Beacon (or homing) Factor” which was developed by NCIM’s chief biochemist, Abel Pena.
The day was perfect! We enjoyed a leisurely breakfast and spent the morning by the pool basking in the sunshine and warmth. Abel and Grace picked us up at the hotel and it was like being reunited with family after more than a year. We made the trip to Tijuana in record time and got into the hospital where the doctors were waiting for Spencer’s arrival. Once we checked in, we were settled into our room and Spencer was taken to the OR (Operating Room) for his treatment. As usual, Abel was in the OR with him which helped him to relax.
Within 30 minutes or less, Spencer came back down and was taken to the recovery room. The MDs told us the procedure went well and he needed to lay flat for 30 minutes or so. Spencer was groggy and still wondering when he was going to get his treatment! We had to explain several times that his treatment was over and that he had received the stem cells. Within an hour, he was drinking juice and eating small bites of food (mostly Jell-O to feed the stem cells with some sugar). He generously gave his sherbet to his big brother and proceeded to play video games and watch movies.
By 4:30 pm we were able to get him dressed and ready to leave. Abel and Grace picked us back up and we headed out for dinner at a local restaurant. Following dinner, we visited a local shopping mall for a bit of Mexican atmosphere and treats, and then headed back across the border into the US. Everything went so smoothly – we know God was with us the entire time!
Since the procedure, we have seen so many changes in Spencer from growth spurts to more muscles firing. His legs are better aligned in his hips – specifically, the muscles in the right leg are firing evenly instead of pulling his right leg outward. He has started to bend his left knee and wiggles his toes more and it is much easier for him to get to his knees and maintain a kneeling position. He even told me last week that “he is wiggling his toes” when he usually says “my toes are wiggling”. The changes we see are new and exciting and seem to be happening with each and every passing day.
We thank God for the knowledge and caring hearts He’s given to Abel and Grace Pena and all the people connected with NCIM. We are also thankful that we’ve been able to take Spencer for two treatments and can’t wait to see what new things he’s going to do tomorrow and the day after!
My name is Kristin Smith and my 2 ½ year old son, Gabe, has myelomeningocele type spina bifida affecting the L3-L4 region of his spine. He also has a VP shunt in place. When he was 1 ½ years old we took him to China for his first stem cell treatment where he received eight (8) intravenous IV treatments with umbilical cord stem cells along with acupuncture, physical therapy, fire cupping and massage. The cost was $30,000 USD. Prior to this treatment Gabe was unable to use his legs and had low hip movement as well as low sensation and poor blood flow in his legs and feet. Following his treatment he was able to move his hips enough to use an RGO brace (which basically supports his legs and moves them once he initiates movement with his hips) that allows him to walk with a walker. In addition, he had greater sensation to his knees and was able to support himself on his knees while holding onto something. He also experienced more sensation in his penis.
In May 2012 we went to Tijuana, Mexico for his second stem cell treatment with Nova Cells Institute (NCIM). We had heard many wonderful things about this group especially with regard to the rapid results that families were seeing in their spina bifida-afflicted children following treatment with Nova Cell’s primed stem cells. At the same time we also heard many negative things about the north Baja area, as I’m sure most people from the States have, e.g., violence, kidnapping, dirty, dangerous, etc. We went despite the rumors and are so thankful that we did! To our surprise Tijuana is very clean, full of nice people and a lot of uniformed young children walking around and playing after school. We ate in a local restaurant around 8 pm and never for a second felt insecure or in any danger whatsoever. It was the opposite of what we were told by well meaning friends and other who were basically just speculated wildly. We had great food and while waiting to cross the border (back into the US) were able to buy some great souvenirs from the local people who were working hard to support their families.
As for the treatment itself, NCIM’s Grace and Abel picked us up at our hotel in San Diego and were simply the best hosts you could ever hope to find. Once at the clinic, our son did not cry when we handed him to the doctor because Abel was in the OR with him throughout the entire procedure which made him feel totally at ease. The procedure went perfectly and his legs almost immediately warmed up (better blood flow) which made both he and us so very happy. Grace stayed with us during Gabe’s treatment and recovery, comforting us and answering all our questions, and then went with my husband to get some food. Amazingly, after they returned with the food our big boy ate an entire plate of chicken and rice thirty. Hardly (30) minutes had elapsed since his treatment!
Within the first week after Gabe’s treatment we began seeing improvements. Among them:
☺He was able to consistently crawl while pulling his legs underneath himself.
☺He was able to climb up 10 stairs without help, pulling his legs up all by himself.
☺ Also, his therapist realized that he was no longer relying on his RGO to move his legs, but was using his own leg muscles to walk!
All of these gains represented firsts for Gabe, mind you.
Now it has been almost two (2) months since our treatment and he is moving his legs from the knee, and has a lot more strength. He has more sensation further down his legs and is a lot faster and more mobile. Also, he is able to move around during play in ways that he never could before.
I would be remiss if I did not point out the vast difference between Gabe’s treatments in China and then Mexico (Nova Cells): The Chinese stem cell & other treatments took place over many weeks, cost $30K USD, and produced some modest physical improvements. The Nova Cell’s primed stem cell treatment took a single day, cost far less than the Chinese treatment, and produced very impressive improvements in Gabe literally coming out of the gate and continuing to this very day.
To say we are all more than delighted with Nova Cells and the wonderful people who make up the NCIM family is an understatement.
Readers should feel free to contact me at firstname.lastname@example.org but please put something in the subject line pertaining to stem cells so I do not think it is spam.
JULY 21, 2012 VIDEO OF GABE: http://www.youtube.com/watch?v=u4xsGl926yo&sns=fb (28 seconds)
ADDITIONAL VIDEOS OF GABE CAN BE FOUND BY CLICKING THIS LINK: https://www.youtube.com/results?search_query=mospina85
REGULAR UPDATES ON GABE’S PROGRESS ARE POSTED TO “GABE WILL WALK” ON FACEBOOK: https://www.facebook.com/#!/GabeWillWalk?fref=ts (NOTE: You will need a Facebook account to access this community page. If you do not have a Facebook account you can easily set one up by clicking this link https://www.facebook.com/r.php?locale=en_US)
Want to know more about NCIM and its stem cell treatment program for neurologic issues in children and adults? Call NCIM’s US information line at 1-562-916-3410 (10 am to 7 pm Pacific Time, Monday through Friday) or email NCIM patient care facilitator/educator Grace Pena by e-mail at email@example.com.
I brought my son, Bryson Chailer, to Mexico during April (2012) for his first stem cell treatment and I just wanted to give you an update. First of all, let me say, Grace and Abel Pena are two of the sweetest, most caring, most hospitable people I have ever met. They are genuine and truly care about their patients and made our experience top notch. The Mexican doctor and his team and the nursing staff were all fantastic as well. We were treated professionally and with love and everything was explained to us so we could understand every single step of the entire process. We couldn’t be more impressed and will send people your way because of our wonderful experience with Nova Cells Institute.
Within 48 hours of his treatment I saw changes in Bryson and want to share these with everyone: I noticed right away that he had more energy, which is almost unimaginable, because he was already a little fire ball anyway, but he was wound for sound after the stem cell implantation! I noticed right away that he slept more soundly that night and was not tossing and turning and having interrupted sleep. He slept this way last night as well. Bryson has a vesicostomy due to bladder issues, reflux into his kidneys, and the catheter not working properly. This is temporary and to give his bladder a rest and time to repair and will be reversed. Since he urinates out of the stoma, his diaper is wet only at the top and I noticed the morning after the stem cells, his diaper was wet from top to bottom, which I think means he had been urinating, not only from the stoma, but from his penis as well. His diaper was just saturated all in the front. I noticed this same thing this morning. He pooped in the middle of the night and had not been given any kind of stool softener or enema, which is usually what we have to do to get him to poop. He pooped this morning without any enema also. His appetite has increased tremendously. He is eating more food and more often.
Also, more recently Bryson has begun having movement in his right foot and toes! He has always had movement in his left foot and toes, but never on his right foot and toes (Bryson’s level of spina bifida is at L1-L5, so he is paralyzed from the waist down). Having movement in his feet and toes is astounding! I don’t think he has any sensory or sensation yet, but he definitely has something going on to have movement. He wiggles his toes when I run my nails down the bottom of his feet. He is actually responding to the Babinski’s reflex test, which makes your toes flex outward when stimulated.
These are just the few things I’ve seen in my son since his treatment by NCIM. I will let you know of any other improvements as they happen.
You can read more on a blog site set up to showcase Bryson’s story and especially his response to his treatment with adult (nonembryonic) stem cells: http://www.stemcellsforbryson.blogspot.com/
FACEBOOK ENTRIES (2012)
Just wanted to share some progress I saw in Bryson last night! I noticed when he was on his tummy, he lifted his right leg off the ground and held it there for quite some time! I was just sitting there watching in amazement! Both of his legs are moving like crazy at night too!
My mom and I were at Alco today letting Bryson pick out a toy and when he rides in the shopping cart, his legs usually just hand down and dangle, but he actually straightened his left leg from the dangling, bended position! Mom and I both just looked at each other and I bent it back down and he lifted it again, and again! One happy momma and one happy Nana! Praise God for taking the stem cells right where they need to be! Bryson continues to make progress every single day!
Such great news to share!!!! Bryson just went to therapy and the therapist says his left leg is definitely moving and extending by using his quads and hamstrings that are firing! Also, his right hip flexsor is firing! God is making the stem cells work quicker than we could ever even imagine! To God be the glory!
Take That Spina Bifida!!!!!
Bryson doing leg lifts. This video was uploaded from an Android phone
Knew I would get a good report from the therapist! It just keeps on getting better! Bryson now has slight firing in his left hip! So, he has active hamstring and quad function in the left leg, now slight firing of the left hip, active firing in the right hip, and movement in both feet and toes! God is so good and thank you Jesus!
Update on Bryson since stem cell treatment! WARNING-may contain too many details and too much information! Lol!
Because Bryson has spina bifida, he has what’s called neurogenic bladder and bowel. This means the nerves don’t get signals to the brain to go potty like everyone else, so he has to take stool softeners and laxatives on a daily basis in order to go potty. He is currently refusing to take his meds and I have tried everything and I was at my wits end, so I’ve just left it in God’s hands for the past several days, and without any medication, he has pooped totally on his own, with no stool softener or laxatives! He also felt stomach pains for the first time ever from having diarrhea, which should not happen to someone who is paralyzed from the waist down! This may not sound exciting to most people, but to a mom of a child with spina bifida, this is huge! Go stem cells go! I’ve never thanked Jesus for poop and a stomach ache before, but you bet I am now!!!!!
I’m one excited momma right now! Bryson just crawled on his hands and knees for the first time! He crawled 4 big steps before his legs gave way! He has never done anything but army crawl, using his arms, with his legs dragging behind him! He actually crawled on on his hands and knees by sitting on his knees and pulling them forward by using his legs! Yay! My God is so good all the time! Thank you Jesus for your continued healing! Go stem cells go!
My little man just crawled on his hands and knees about 6 feet without stopping! Praise God! Can I get a woot woot!
Thanks to God and Nova Cells Institute, Bryson is doing better than ever after his stem cell treatment and he is walking so great in his RGO braces now!
VIDEO: Go Stem Cells Go!!!!
“Bryson’s Story” an 8 minute, 40 second video compilation “showing progress from birth until stem cell treatment in 2012”: http://www.youtube.com/watch?v=JqySzJ7smKA&feature=share
Praying for Mama! God is still the Great Physician and Healer and the bible says that if you are all believing in total healing, and you are all standing in faith together, your Mama will be healed! Something to think about that will make a huge difference in her quality of like is stem cell treatment. Stem cell transplants are doing phenomenal things for so many diseases today and my son, age 3, who has spina bifida and is paralyzed from the waist down, got stem cell treatment 3 months ago and he is already seeing major results! He is moving his toes, crawling on his hands and knees and is walking in braces with a walker now! He is also off all medications as well! God led us down the path of stem cells for our son and He is making sure those stem cells go right where they need to be in his body and my son is being healed more and more every day! Praise God! God bless your entire family and you are all in my prayers, especially Mama 🙂
Bryson is getting so good at walking in braces with his walker! Miss Elsie is just there for added support and barely has to touch his walker now! He’s doing all the work totally on his own! I am so proud of my little man! We were told Bryson would absolutely NEVER do this and look at him go! Praise God! Nova Cells Institute and their stem cells rock!
LATEST VIDEO: http://www.youtube.com/watch?v=3yggQiXU_wA&feature=share
Monday, August 20, 2012 – Rural TV Feature on Bryson and Donation Information!
LATEST ENTRIES ON BRYSON’S BLOG– 2013
Thursday, February 14, 2013
It’s been so long since I’ve posted and figured it was about time to stop my busy life for about 5 mins to give an update! Shame on me for not taking time until now! Let’s see….. Bryson is still continues to make progress after his stem cell treatment last year and he is walking so great in his RGO braces, using his walker. He’s really become quite the pro at it actually! He still has the vesicostomy in place, but we have been noticing that his bladder capacity seems to be increasing, which is great news. He is crawling on all fours these days and is getting so much stronger and is able to do just about anything. He has a wheelchair now for his main means of getting around, but he tells us that when he gets bigger and is grown up that he will not need his wheelchair because he will be able to stand and walk on his own! We love his positive outlook! He tells his legs, “In the name of Jesus, move legs!” He is commanding that mountain to move just like the bible tells us to! We are very excited to announce that we will be taking Bryson back to Nova Cells Institute in Mexico on April 9th for his second stem cell treatment. We can’t wait to see what results this second round of stem cells brings for him. We will most likely take him to an intensive physical therapy program in another state about 4 to 6 months after the treatment this time. The planning is already in full-swing for the 3rd Annual Barrels for Bryson event and it will be held in September of this year. This one will be even bigger and better than the last one! God has blessed us so much in the past year and we see bright things ahead for our future! We give Him thanks, praise, honor and glory for ALL these blessings and for ALL future blessings! Our faith in God’s healing for Bryson is still as strong as ever and we know God has many great things planned for our sweet baby boy. Bryson is growing up to be a mighty man of God and we know that God will see to it that he prospers in everything he does in life. Reports of more progress to come after the treatment in April, so stay tuned!!!!!
Posted by Kara Underwood
Saturday, August 24, 2013
We have been busy, busy, busy this year! Bryson has made progress by leaps and bounds and he actually starts pre-k on Monday. My goodness, where has the time gone? Our lil guy is growing and getting so big and has been crawling like a champ these days, and I don’t mean army crawling like he used to, I mean crawling on all fours, and he stays on his knees most of the time. This is such progress! He has gotten so much stronger and his balance is improving more and more and his core and lower back are getting stronger as well. He cognitive skills are through the roof! He is so very smart! He continues to walk great in his RGO braces and uses the walker like a pro. The 3rd Annual Barrels 4 Bryson event is just around the corner in September and we are praying for a super turnout so we can purchase a much needed piece of exercise equipment for the house. He needs an exercise bike called the RT-300 that uses e-stim (electric muscle stimulators) for his legs to gain some muscle mass. All the weight bearing in the world and all the stem cells in the world won’t do any good if he doesn’t have the muscles in his legs and hips to support his weight, so he needs this therapy equipment desperately. Of course, nothing is covered by any insurance and it’s quite costly. $26,000 to be exact! Yikes! Please be in agreement with us in asking the Lord to supply our financial needs this year. God has blessed us so much and we know he hears our prayers and we thank Him and glorify Him always! Bryson’s bladder seems to be gaining capacity way more with this stem cell treatment and he sometimes even poops all on his own, without having to do the enema. Yay for pee and poop! Oh, the things that excite and impress a mom of a kid with spina bifida! We are so excited to see what God has in store for Bryson throughout his life. We know for a fact God has healed Bryson and continues to show us His healing more and more every day, as He is placing those stem cells right where they need to be in his body for healing and growing nerves. Bryson can totally lift his left leg all the way in the air and he continues to move his toes and feet. He even pulled his right leg so hard when getting a diaper change that he pulled it right out of my hand! He has so many little twitches and movements that he didn’t have before and it’s so exciting to see these changes. We are about to start hippo therapy (horseback riding) in the fall and after the barrel race, he is going to be getting a new type of therapy called the Anat Baniel Method, which the therapist manually manipulates the muscles to try to re-route signals to the brain to make the legs move. This is gonna be an exciting year with more exciting things to come! The ABM, along with the therapy bike should make significant improvements for Bryson and we can’t wait to witness what God has planned for our little trooper! Bryson never ceases to amaze us with his growth and improvement throughout his short life. He is definitely a mover and a shaker and has big plans. God has used Bryson, our family, and our experiences to help and improve the lives of others and we couldn’t be happier that He chose us in this way. We are so very proud of this brave little boy and we are so glad God chose us to be his parents. Bryson has truly made us better people and has changed our lives for the better in every way. I promise I won’t take so long to report Bryson’s progress next time! Maybe I can get a few things done now that the little toot will be in school 3hrs a day! Lol! Until next time, always remember…….All things can be done through Christ who strengthens us! God bless you and love you!
Posted by Kara Underwood
Friday, October 25, 2013
We are so excited about an upcoming event for Bryson that’s about to get underway! A Mane Event Stallion Auction will be held on Nov. 11-23 and all proceeds will go toward a very expensive piece of medical equipment Bryson needs to build the muscles in his legs so he can have the muscular support needed for weight-bearing and walking. There are some AMAZING stallions up for auction and we are floored by the response we have gotten from the stallion owners who have so generously donated them. The GigerMd is a therapy bicycle that combines mild estim for muscle-building and it costs a whopping $26,000! Yikes! Things like stem cell treatments, alternative therapies, therapy equipment, and things of that nature are not covered by insurance, but are so needed for Bryson’s ability to walk in the future. The 3rd Annual Barrels 4 Bryson event was a huge success and we raised enough money for the $16,000 stem cell treatment he needs and we are so very thankful for everyone who donated and everyone who participated and made that event possible. God has blessed Bryson so much with these fundraisers so he can continue to get the things he needs to make his quality of life better and they help him to achieve his dream of walking one day. We serve an awesome God, don’t we? We would like to thank Dr. Wes Williams for his continued support in the Barrels 4 Bryson event and we want to extend a huge thank you to Erin Kemp, Crystal Nichols, my mom, Kathy Russell, and my niece, Kenzi Pogue for putting this new annual event together for Bryson. We would also like to thank Arron Watson, a very talented song-writer and Texas country artist, for taking notice of this event and generously donating a signed guitar for this auction. Also, for the people who have donated other items for people to bid on. We love you guys! It blows us away at the amount of support everyone has shown, and continues to show, Bryson. He WILL WALK and we thank everyone who has been a part of his journey. We would never be able to afford these things for him without the generous donations of everyone involved in these events. God bless all of you and thank you so much from the bottom of our hearts! May God richly bless each of you!
Posted by Kara Underwood
Want to know more about NCIM and its stem cell treatment program for neurologic issues in children and adults? Call NCIM’s US information line at 1-562-916-3410 (10 am to 7 pm Pacific Time, Monday through Friday) or email NCIM patient care facilitator/educator Grace Pena by e-mail at firstname.lastname@example.org.
If you have not done so please read the “Spencer Tomc” story: http://bit.ly/n333qh
UPDATE on Spencer sent NCIM on 10-20-2011 from Mrs. (Jennifer) Tomc:
We had an appointment with Spencer’s Neurosurgeon this morning to follow-up on his tethered cord. His exact words as we were leaving were, “I would chase you away from detethering surgery with a whip.”
Great news for us for sure! We thank God and each of you for the supplements and therapies and support and information to turn this around for Spencer. We will continue all of these to continue his healing.