Tag Archives: spina bifida

Improvements coming out of the gate for Evie Morgan (3 year old little girl with Spina bifida)

Three year old Evie Morgan has spina bifida and a Facebook page devoted to her journey to betterment at https://www.facebook.com/evieswarriors/. She was treated in Mexico by Nova Cells Institute doctors during April (2016) and soon her Mum, Heather, was emailing NCIM patient care coordinator, Grace Odgers PhD cand., a series of positive reports and video clips.  Heather also made posts to the aforementioned Facebook page — three of which follow further down below.

Evie Morgan - April 2016
Evie in Mexico getting IV infusion

 

On 4-27-16 Heather Morgan sent this email message to NCIM’s Grace Odgers, PhD cand.:

We felt very comfortable in the hospital. The room was very clean and had a private bathroom and sink. The pediatrician, Dr. Sanchez, was amazing and Evie loved her so much. Dr. Sanchez spoke great English and we had no trouble understanding her at all. The nurses were very attentive to whatever it was that Evie needed and Grace was always right there to translate for us if they had questions or we wanted to say something. The procedure was quick and painless. Within 5 minutes of receiving the treatment Evie began moving her toes. In the week and a half since treatment Evie is still able to move her toes on command (prior to treatment Evie only had very little involuntary movement of her toes), she is urinating more on her own and has very increased balance. She is now beginning to walk much longer distances with her canes (before she had a walker). At her next urology appointment we are going to be able to start discussing next steps in seeing how her bladder can fully function without medication. We are very pleased with the results we have seen thus far and can’t wait to see what else Evie is going to do!

 Evie’s Warriors – Posted on April 22, 2016 (Friday)
 

This video was taken 2 days after stem cells. Evie is now able to move her toes on command! Before it was completely involuntary movement. Pardon her sassiness at the beginning 😂 Evie also has incredibly improved balance and is able to walk much longer distances with her canes! ‪#‎evieswarriors‬

EVIE MORGAN - 2 days after SCT treatment - April 2016
Go to Evie’s Warriors Facebook page to watch

 

Evie’s Warriors

April 16 at 5:46pm ·

Evie is showing improvements in her bladder function and abilities since yesterday. We aren’t sure if this is going to be a consistent thing but we are definitely watching now. This is nuts.

Sorry for lack of updates. Everything went perfectly and the treatment is now complete. Within minutes Evie was flexing her right ankle when asked and wiggling all 5 toes. Some of the movement is involuntary right now as the cells are being repaired. We will continue to see results for a few months. Thank you all for supporting our girl! ‪#‎evieswarriors‬

Evie's Warriors's photo.

 

 

October is #spinabifidaawareness (Spina Bifida Awareness) month. Nova Cells has a high rate of success with spina bifida.

October is #spinabifidaawareness” (Spina Bifida Awareness) month. If you or someone you love is affected by spina bifida, please read this concerning Nova Cell Institute’s highly successful treatment program for this condition: http://www.novacellsinstitute.com/spina-bifida-stem-cells.html

Rikky Foresman FACEBOOK update & video (Spina Bifida)

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Wow, Wow, Wow & WOW!!! AWESOME day at Therapy today so we decided to do our 1st EVER trip around the grocery store!! This kid WALKED (with huge steps nonetheless) from the car into the store then all the way way down 1 aisle and back up the other to the register and back to the car!!!!


Oh yeah….we raised just over $2,000 in Easter Egg sales too! Up to $6,000 of approx $20,000 needed to go back to NOVA for Stem Cells. grin emoticon
‪#‎GOSTEMCELLS

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Many “giant steps” for Dani

NCIM N SIGN - JULY  2013Danielle “Dani” Smith was born in September 2006 with spina bifida in which her spinal cord did not completely form and resulted in partial paralysis from the waist down (Myelomeningocele). Since then this brave little girl has had five major operations including one to place her spinal cord back in her body, three brain surgeries, and double eye surgery. She then did two stem cell treatments and has undergone lots of physical therapy. And, during June 2013 she was treated in Mexico by Nova Cells using primed stem cells and its Beacon Factor. This treatment and Dani’s responses are reflected in this news release from October 2013: http://www.24-7pressrelease.com/pdf/2013/10/05/press_release_364003.pdf

Dani has made many gains during the year since that news release was published including, most recently, something captured by her mother in a short video. This clip was inserted in an animated video which can be accessed by going to https://www.youtube.com/watch?v=RUBvyFt0Vm4#t=109 or click the screen image below,

 

 

Facebook video & written update by Kara Underwood on her son, Bryson

Kara Underwood

Walking on the treadmill for the first time in his life! He’s in a harnessing system and only has braces from the knees down! We were told he would NEVER in his lifetime do this! All I have to say to every doctor that said NO and he CAN’T and he NEVER WILL is this…….we serve an awesome mighty God who says my son WILL WALK! He promises healing to all who ask for it as we receive it for our son in the name of Jesus!

Tatyana Kushniryuk shares wonderful news about her son Rowan’s response to treatment (Spina Bifida)

2014-03-19 14.28.35My son Roman was born with Spina Bifida in 2010. He is a L4-L5 level which means he cannot void on his own and does not have bowel control. His legs were very weak and he could not walk independently until he was 2.5 years old. He was able to hold on to a walker and push it slowly but the big change came after stem cells. He received his first stem cell treatment in China, and in Mexico twice since then. The latest change was from Mexico.

We arrived to San Diego a few days before treatment and checked into our hotel downtown. The next few days we spent exploring the city and taking a trip to the San Diego SeaWorld courtesy of Warrior Families Beating Spina Bifida Foundation. Roman really enjoyed that trip because he got to see the sea lions and pet the little sharks. He was not as excited about Shamu as I was.

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The next day we were escorted to Mexico across the border with Grace and Abel Pena. They were really great and picked us up in their car and drove us to the hospital. The staff greeted us as we registered in as patients, signed some papers and answered questions about his blood type etc. I can understand how some people may be cautious signing things and giving consent to doctors in a different country but since I knew Grace and Abel from our previous trip to Mexico, I was at ease.

The doctors and nurses were very accommodating and made sure we were comfortable with our room and the procedure. It was much faster than I remember it the first time. The anesthesiologist and doctors talked about how they would only put him to sleep for a very short time and not keep him under sedation when not necessary. They had performed the spinal taps many times and knew their jobs very well. I felt confident in their care and did not have second thoughts about the procedure. I only wish that Roman cooperated as well as I thought he would. He did not like the taste of versed (the relaxing serum before procedures) so we opted to take him without it to the procedure room. The hospital has the coolest stair case that has a slide like side so they can transport people in a wheelchair up and down the twisty ramps.

During the procedure, Grace and I went to eat at a local place so that I would not be nervous and we hurried back because Roman was not going to be in the procedure very long. After we came back, Roman was not awake yet but was brought in soon after. He did great; there was no pain in his back or the IV. He was a bit freaked out thinking that the procedure was just beginning after looking at his IV. It took a while to convince him that we are all done.

After about half an hour, he began eating everything, and I mean everything he could get his hands on. The Jell-O, the rice, the juice, the fruit cup. We had asked for refills. He was feeling really great; He said “Is this Mexico? I like Mexico”…while he’s eating and watching Netflix on our laptop. (by the way, wifi works there and I would take a laptop with Netflix if you have it.)

We had a great experience and soon after we left back across the border to our hotel room. We stopped on the way while Grace and Able treated us to some local cuisine of ice cream, then sandwiches while walking around the outside mall.

Since the trip we have noticed Roman waking up in the middle of the night saying he feels his butt more and that he has to go pee. One day after about 1.5 months he had a wet diaper. He has never had a wet diaper in 6 years! Since then his recurrent infections suddenly stopped and he has been having more strength in his legs to run and walk without his AFO shoes. I am excited seeing these results they are truly worth it! The peeing is becoming more consistent and we are seeing good results in his muscle strength as well.

I encourage anyone that wants to give their kiddo a chance to improve their life to take a chance and make this trip happen.

Tatyana Kushniryuk

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