I brought my son, Bryson Chailer, to Mexico during April (2012) for his first stem cell treatment and I just wanted to give you an update. First of all, let me say, Grace and Abel Pena are two of the sweetest, most caring, most hospitable people I have ever met. They are genuine and truly care about their patients and made our experience top notch. The Mexican doctor and his team and the nursing staff were all fantastic as well. We were treated professionally and with love and everything was explained to us so we could understand every single step of the entire process. We couldn’t be more impressed and will send people your way because of our wonderful experience with Nova Cells Institute.
Within 48 hours of his treatment I saw changes in Bryson and want to share these with everyone: I noticed right away that he had more energy, which is almost unimaginable, because he was already a little fire ball anyway, but he was wound for sound after the stem cell implantation! I noticed right away that he slept more soundly that night and was not tossing and turning and having interrupted sleep. He slept this way last night as well. Bryson has a vesicostomy due to bladder issues, reflux into his kidneys, and the catheter not working properly. This is temporary and to give his bladder a rest and time to repair and will be reversed. Since he urinates out of the stoma, his diaper is wet only at the top and I noticed the morning after the stem cells, his diaper was wet from top to bottom, which I think means he had been urinating, not only from the stoma, but from his penis as well. His diaper was just saturated all in the front. I noticed this same thing this morning. He pooped in the middle of the night and had not been given any kind of stool softener or enema, which is usually what we have to do to get him to poop. He pooped this morning without any enema also. His appetite has increased tremendously. He is eating more food and more often.
Also, more recently Bryson has begun having movement in his right foot and toes! He has always had movement in his left foot and toes, but never on his right foot and toes (Bryson’s level of spina bifida is at L1-L5, so he is paralyzed from the waist down). Having movement in his feet and toes is astounding! I don’t think he has any sensory or sensation yet, but he definitely has something going on to have movement. He wiggles his toes when I run my nails down the bottom of his feet. He is actually responding to the Babinski’s reflex test, which makes your toes flex outward when stimulated.
These are just the few things I’ve seen in my son since his treatment by NCIM. I will let you know of any other improvements as they happen.
You can read more on a blog site set up to showcase Bryson’s story and especially his response to his treatment with adult (nonembryonic) stem cells: http://www.stemcellsforbryson.blogspot.com/
FACEBOOK ENTRIES (2012)
Just wanted to share some progress I saw in Bryson last night! I noticed when he was on his tummy, he lifted his right leg off the ground and held it there for quite some time! I was just sitting there watching in amazement! Both of his legs are moving like crazy at night too!
My mom and I were at Alco today letting Bryson pick out a toy and when he rides in the shopping cart, his legs usually just hand down and dangle, but he actually straightened his left leg from the dangling, bended position! Mom and I both just looked at each other and I bent it back down and he lifted it again, and again! One happy momma and one happy Nana! Praise God for taking the stem cells right where they need to be! Bryson continues to make progress every single day!
Such great news to share!!!! Bryson just went to therapy and the therapist says his left leg is definitely moving and extending by using his quads and hamstrings that are firing! Also, his right hip flexsor is firing! God is making the stem cells work quicker than we could ever even imagine! To God be the glory!
Bryson doing leg lifts. This video was uploaded from an Android phone
Knew I would get a good report from the therapist! It just keeps on getting better! Bryson now has slight firing in his left hip! So, he has active hamstring and quad function in the left leg, now slight firing of the left hip, active firing in the right hip, and movement in both feet and toes! God is so good and thank you Jesus!
Update on Bryson since stem cell treatment! WARNING-may contain too many details and too much information! Lol!
Because Bryson has spina bifida, he has what’s called neurogenic bladder and bowel. This means the nerves don’t get signals to the brain to go potty like everyone else, so he has to take stool softeners and laxatives on a daily basis in order to go potty. He is currently refusing to take his meds and I have tried everything and I was at my wits end, so I’ve just left it in God’s hands for the past several days, and without any medication, he has pooped totally on his own, with no stool softener or laxatives! He also felt stomach pains for the first time ever from having diarrhea, which should not happen to someone who is paralyzed from the waist down! This may not sound exciting to most people, but to a mom of a child with spina bifida, this is huge! Go stem cells go! I’ve never thanked Jesus for poop and a stomach ache before, but you bet I am now!!!!!
I’m one excited momma right now! Bryson just crawled on his hands and knees for the first time! He crawled 4 big steps before his legs gave way! He has never done anything but army crawl, using his arms, with his legs dragging behind him! He actually crawled on on his hands and knees by sitting on his knees and pulling them forward by using his legs! Yay! My God is so good all the time! Thank you Jesus for your continued healing! Go stem cells go!
My little man just crawled on his hands and knees about 6 feet without stopping! Praise God! Can I get a woot woot!
Thanks to God and Nova Cells Institute, Bryson is doing better than ever after his stem cell treatment and he is walking so great in his RGO braces now!
VIDEO: Go Stem Cells Go!!!!
Bryson walking in RGO braces after stem cell treatment. He is getting better and better!
BRYSON CHAILER TO BE SHOWCASED ON RFD-TV‘S “HORSE TALK LIVE“! You can learn more by reading Progress Report and Event Coming Soon! on Bryson’s Blog at http://bit.ly/OuqNfi.
“Bryson’s Story” an 8 minute, 40 second video compilation “showing progress from birth until stem cell treatment in 2012”: http://www.youtube.com/watch?v=JqySzJ7smKA&feature=share
Kara Underwood commented on TLC (July 23, 2012)
Praying for Mama! God is still the Great Physician and Healer and the bible says that if you are all believing in total healing, and you are all standing in faith together, your Mama will be healed! Something to think about that will make a huge difference in her quality of like is stem cell treatment. Stem cell transplants are doing phenomenal things for so many diseases today and my son, age 3, who has spina bifida and is paralyzed from the waist down, got stem cell treatment 3 months ago and he is already seeing major results! He is moving his toes, crawling on his hands and knees and is walking in braces with a walker now! He is also off all medications as well! God led us down the path of stem cells for our son and He is making sure those stem cells go right where they need to be in his body and my son is being healed more and more every day! Praise God! God bless your entire family and you are all in my prayers, especially Mama 🙂
Stand By Mama in Her Fight Against ALS: Cake Boss: TLC
Bryson is getting so good at walking in braces with his walker! Miss Elsie is just there for added support and barely has to touch his walker now! He’s doing all the work totally on his own! I am so proud of my little man! We were told Bryson would absolutely NEVER do this and look at him go! Praise God! Nova Cells Institute and their stem cells rock!
LATEST VIDEO: http://www.youtube.com/watch?v=3yggQiXU_wA&feature=share
Monday, August 20, 2012 – Rural TV Feature on Bryson and Donation Information!
LATEST ENTRIES ON BRYSON’S BLOG– 2013
Thursday, February 14, 2013
It’s been so long since I’ve posted and figured it was about time to stop my busy life for about 5 mins to give an update! Shame on me for not taking time until now! Let’s see….. Bryson is still continues to make progress after his stem cell treatment last year and he is walking so great in his RGO braces, using his walker. He’s really become quite the pro at it actually! He still has the vesicostomy in place, but we have been noticing that his bladder capacity seems to be increasing, which is great news. He is crawling on all fours these days and is getting so much stronger and is able to do just about anything. He has a wheelchair now for his main means of getting around, but he tells us that when he gets bigger and is grown up that he will not need his wheelchair because he will be able to stand and walk on his own! We love his positive outlook! He tells his legs, “In the name of Jesus, move legs!” He is commanding that mountain to move just like the bible tells us to! We are very excited to announce that we will be taking Bryson back to Nova Cells Institute in Mexico on April 9th for his second stem cell treatment. We can’t wait to see what results this second round of stem cells brings for him. We will most likely take him to an intensive physical therapy program in another state about 4 to 6 months after the treatment this time. The planning is already in full-swing for the 3rd Annual Barrels for Bryson event and it will be held in September of this year. This one will be even bigger and better than the last one! God has blessed us so much in the past year and we see bright things ahead for our future! We give Him thanks, praise, honor and glory for ALL these blessings and for ALL future blessings! Our faith in God’s healing for Bryson is still as strong as ever and we know God has many great things planned for our sweet baby boy. Bryson is growing up to be a mighty man of God and we know that God will see to it that he prospers in everything he does in life. Reports of more progress to come after the treatment in April, so stay tuned!!!!!
Posted by Kara Underwood
Saturday, August 24, 2013
We have been busy, busy, busy this year! Bryson has made progress by leaps and bounds and he actually starts pre-k on Monday. My goodness, where has the time gone? Our lil guy is growing and getting so big and has been crawling like a champ these days, and I don’t mean army crawling like he used to, I mean crawling on all fours, and he stays on his knees most of the time. This is such progress! He has gotten so much stronger and his balance is improving more and more and his core and lower back are getting stronger as well. He cognitive skills are through the roof! He is so very smart! He continues to walk great in his RGO braces and uses the walker like a pro. The 3rd Annual Barrels 4 Bryson event is just around the corner in September and we are praying for a super turnout so we can purchase a much needed piece of exercise equipment for the house. He needs an exercise bike called the RT-300 that uses e-stim (electric muscle stimulators) for his legs to gain some muscle mass. All the weight bearing in the world and all the stem cells in the world won’t do any good if he doesn’t have the muscles in his legs and hips to support his weight, so he needs this therapy equipment desperately. Of course, nothing is covered by any insurance and it’s quite costly. $26,000 to be exact! Yikes! Please be in agreement with us in asking the Lord to supply our financial needs this year. God has blessed us so much and we know he hears our prayers and we thank Him and glorify Him always! Bryson’s bladder seems to be gaining capacity way more with this stem cell treatment and he sometimes even poops all on his own, without having to do the enema. Yay for pee and poop! Oh, the things that excite and impress a mom of a kid with spina bifida! We are so excited to see what God has in store for Bryson throughout his life. We know for a fact God has healed Bryson and continues to show us His healing more and more every day, as He is placing those stem cells right where they need to be in his body for healing and growing nerves. Bryson can totally lift his left leg all the way in the air and he continues to move his toes and feet. He even pulled his right leg so hard when getting a diaper change that he pulled it right out of my hand! He has so many little twitches and movements that he didn’t have before and it’s so exciting to see these changes. We are about to start hippo therapy (horseback riding) in the fall and after the barrel race, he is going to be getting a new type of therapy called the Anat Baniel Method, which the therapist manually manipulates the muscles to try to re-route signals to the brain to make the legs move. This is gonna be an exciting year with more exciting things to come! The ABM, along with the therapy bike should make significant improvements for Bryson and we can’t wait to witness what God has planned for our little trooper! Bryson never ceases to amaze us with his growth and improvement throughout his short life. He is definitely a mover and a shaker and has big plans. God has used Bryson, our family, and our experiences to help and improve the lives of others and we couldn’t be happier that He chose us in this way. We are so very proud of this brave little boy and we are so glad God chose us to be his parents. Bryson has truly made us better people and has changed our lives for the better in every way. I promise I won’t take so long to report Bryson’s progress next time! Maybe I can get a few things done now that the little toot will be in school 3hrs a day! Lol! Until next time, always remember…….All things can be done through Christ who strengthens us! God bless you and love you!
Posted by Kara Underwood
Friday, October 25, 2013
We are so excited about an upcoming event for Bryson that’s about to get underway! A Mane Event Stallion Auction will be held on Nov. 11-23 and all proceeds will go toward a very expensive piece of medical equipment Bryson needs to build the muscles in his legs so he can have the muscular support needed for weight-bearing and walking. There are some AMAZING stallions up for auction and we are floored by the response we have gotten from the stallion owners who have so generously donated them. The GigerMd is a therapy bicycle that combines mild estim for muscle-building and it costs a whopping $26,000! Yikes! Things like stem cell treatments, alternative therapies, therapy equipment, and things of that nature are not covered by insurance, but are so needed for Bryson’s ability to walk in the future. The 3rd Annual Barrels 4 Bryson event was a huge success and we raised enough money for the $16,000 stem cell treatment he needs and we are so very thankful for everyone who donated and everyone who participated and made that event possible. God has blessed Bryson so much with these fundraisers so he can continue to get the things he needs to make his quality of life better and they help him to achieve his dream of walking one day. We serve an awesome God, don’t we? We would like to thank Dr. Wes Williams for his continued support in the Barrels 4 Bryson event and we want to extend a huge thank you to Erin Kemp, Crystal Nichols, my mom, Kathy Russell, and my niece, Kenzi Pogue for putting this new annual event together for Bryson. We would also like to thank Arron Watson, a very talented song-writer and Texas country artist, for taking notice of this event and generously donating a signed guitar for this auction. Also, for the people who have donated other items for people to bid on. We love you guys! It blows us away at the amount of support everyone has shown, and continues to show, Bryson. He WILL WALK and we thank everyone who has been a part of his journey. We would never be able to afford these things for him without the generous donations of everyone involved in these events. God bless all of you and thank you so much from the bottom of our hearts! May God richly bless each of you!
Posted by Kara Underwood
Want to know more about NCIM and its stem cell treatment program for neurologic issues in children and adults? Call NCIM’s US information line at 1-562-916-3410 (10 am to 7 pm Pacific Time, Monday through Friday) or email NCIM patient care facilitator/educator Grace Pena by e-mail at firstname.lastname@example.org.