Since having done stem cells February 6, angel went 24 days without a Tonic seizure!! Before stem cells he was having them everyday 2-4 a day. It only lasted a couple seconds and recovered great afterwards. And with the cluster of infantile spasms some days it seems like there’s none and other days he will have 1-2 maybe lasting only a couple seconds and before he was having 2-4 clusters a day lasting 6-10 mins everyday!! I have also completely weaned him off zonegran his last dose was February 28. So now he’s only on 2 meds depakote and felbamate.
YOU’LL FIND AN EARLIER ENTRY ON ANGEL AT http://ncimx.wordpress.com/2014/02/16/epilepsy-turnaround-for-an-angel-angel-sosa/