Angel Sosa is 4 years old and has not exactly had an easy ride in life. Born to loving parents and a large family he entered this world saddled with lots of neurological and physical challenges. Among them: Infantile spasms, a difficult-to-treat form of childhood-onset epilepsy called Lennox–Gastaut syndrome (LGS) or simply Lennox syndrome, and developmental delays. According to his loving Mum, Monique, he was ““having 10 clusters of 10-11 seizures lasting six (6) minutes each day and was having ten tonic seizures a day sometimes lasting up to 3 minutes without breathing.”
As you might expect little Angel’s early life was spent seeing doctors and therapists and taking drugs to control his epilepsy (Three currently: Felbamate, Valproic acid, and Zonisemide). Naturally, his parents kept an eye on the news and the Web for any medical advances that might offer any hope of remediating their son’s intractable epilepsy and other challenges. With the advent and growth of adult (nonembryonic) stem cell treatment programs outside the US they saw evidence that perhaps some form of stem cell therapy could help their little boy. As they sorted through the various private stem cell medicine operations abroad they came across accounts of the many turnarounds in children effected by Nova Cell’s primed stem cell treatments and intravenous use of its proprietary Beacon Factor. This encouraged Monique to reach out to NCIM patient educator & care facilitator, Grace (Ph.D. candidate), by phone. Grace then walked her through what NCIM doctors and scientists had accomplished and documented in treated patients and then ably tackled all her questions and concerns. Satisfied with what she had learned, the Sosa’s, enrolled their son in the NCIM treatment program and read the patient handbook (This link is to the abridged version of NCIM’s patient handbook. Those who wish to access the full version must register). Later, on the heels of Angel’s approval for treatment by NCIM physicians including a pediatric neurologist, she and her husband booked him for care on 6 February (2014).
When the “big day” arrived for Angel, Grace noted this about the little boy:
While waiting for his treatment Angel was very stiff and somewhat arching backward. His eyes were moving around the room randomly and, though he would look at you if you called his name after a couple of times, he did so only for a split second and it seemed that he saw right through you. His mom had to give him his dose of medications because he was getting a little more stiff and she knew they were wearing off.
About an hour after his stem cell treatment Angel’s mom mentioned to us that both she and his father were impressed with how relaxed Angel is including his normally stiff legs. As the attending physician was checking him in recovery Angel did something amazing: He fixed his gaze on him for about 5 seconds. The doctor was both amazed and incredulous. Then Angel’s father said ‘Oh yea, he already has focused his gaze on his mom and I.’ Within an hour Angel was already aware of his surroundings and the people around him.
In addition, Angel’s legs which were normally ice cold were now pink and warm and remained so.
After Angel got home and settled in Monique shared this with Grace by phone and later by email:
The Thursday morning of his stem cell treatment he had 3 tonic seizures and then after stem cells no more seizures till late Sunday night he had 2 small quick seizures. All this week he’s only had 3 seizures! And no big seizures at all! No more 6 minute clusters 🙂
In therapy his therapists have noticed improvements already! He feels so much stronger! He is tolerating standing a little more and one of his therapists noticed he was using the muscles on his arm and shoulders. Everyone has noticed that he’s more alert and happy and has more energy! On Tuesday he looked at me and smiled Mind you, he has never smiled for no reason.
Monique added that Angel’s three (3) year old sister was super excited by the fact her brother was following her all over the place with his eyes, something she instinctively regarded as a form of playing with her.
She concluded with this:
Thank you NOVA!!! I’m so excited about seeing more gains with my angel! Thank you Grace and Abel!
The Sosa’s have set up a Facebook page for Angel which is at https://www.facebook.com/angel.sosa.52?fref=ts. This page contains photos, videos, posts and more.
CHECK OUT THIS EXCITING UPDATE POSTED ON ANGEL SOSA’S FACEBOOK PAGE (3-3-2014):
Since having done stem cells February 6, angel went 24 days without a Tonic seizure!! Before stem cells he was having them everyday 2-4 a day. It only lasted a couple seconds and recovered great afterwards. And with the cluster of infantile spasms some days it seems like there’s none and other days he will have 1-2 maybe lasting only a couple seconds and before he was having 2-4 clusters a day lasting 6-10 mins everyday!! I have also completely weaned him off zonegran his last dose was February 28. So now he’s only on 2 meds depakote and felbamate.
Want to know more about NCIM and its stem cell treatment program for neurologic issues in children and adults? Call NCIM’s US information line at 1-562-916-3410 or email NCInfodesk@gmail.com.